That stuff costs how much?!?!?!????

We made it home tonight from the PICU. Everything went as planned and there were no surprises. The lab work all came back good. The echo of his heart was good and they managed to get an IV on him the first try! That was a miracle! He is a super hard IV start. At Childrens Hospital he was on a no poke list after 12 failed attempts to get an IV over 2 days. He had to go to the O.R. and be put under just for a stinkin IV! Three times too!! Anyways, the ACTH was overnighted from California and my Dad stayed at the house to sign for it. We were not able to leave the hospital till it was at home safely in the fridge. Now get this....... you may think this is a typo but its not. One vile of the ACTH costs 24,000$! I swear! And three viles were shipped to my house. Do the math.......CRAZY! Apparently this is liquid gold! This is only one months worth too! Here is the next thing I bet you are all thinking.... Did the insurance pay for it??? Yep they did. They were not to happy about it though. The nurse from the neurologists office spent hours on the phone with them yesterday. But they agreed it was necessary. Thank goodness for good insurance! This is why I grudgingly drag my self into work many nights not so much for the paycheck but for my insurance!! Super blessed for that!! Anyways, my kitchen cupboard looks like a pharmacy at this point. Who new a red sharps container went with my kitchen decor??? Its no Pottery Barn but its what I got in life right now!! So I gave the shot this morning at the hospital with the nurse holding Kaden down. In the morning its Brandons turn to wrestle him. Not looking forward to this......... but its what has to be done. We should know in a week if this is going to work or not. I pray it does. There is only one last option for us to stop these seizures if this doesn't work. I am putting a poem on here I found please read it if you have time. I love it!!

WELCOME TO HOLLAND by Emily Perl Kingsley. c1987 by Emily Perl Kingsley. All rights reserved
I am often asked to describe the experience of raising a child with a disability - to try to help people who have not shared that unique experience to understand it, to imagine how it would feel. It's like this......
When you're going to have a baby, it's like planning a fabulous vacation trip - to Italy. You buy a bunch of guide books and make your wonderful plans. The Coliseum. The Michelangelo David. The gondolas in Venice. You may learn some handy phrases in Italian. It's all very exciting.
After months of eager anticipation, the day finally arrives. You pack your bags and off you go. Several hours later, the plane lands. The stewardess comes in and says, "Welcome to Holland."
"Holland?!?" you say. "What do you mean Holland?? I signed up for Italy! I'm supposed to be in Italy. All my life I've dreamed of going to Italy." But there's been a change in the flight plan. They've landed in Holland and there you must stay. The important thing is that they haven't taken you to a horrible, disgusting, filthy place, full of pestilence, famine and disease. It's just a different place.
So you must go out and buy new guide books. And you must learn a whole new language. And you will meet a whole new group of people you would never have met. It's just a different place. It's slower-paced than Italy, less flashy than Italy. But after you've been there for a while and you catch your breath, you look around.... and you begin to notice that Holland has windmills....and Holland has tulips. Holland even has Rembrandts.
But everyone you know is busy coming and going from Italy... and they're all bragging about what a wonderful time they had there. And for the rest of your life, you will say "Yes, that's where I was supposed to go. That's what I had planned."
And the pain of that will never, ever, ever, ever go away... because the loss of that dream is a very very significant loss. But... if you spend your life mourning the fact that you didn't get to Italy, you may never be free to enjoy the very special, the very lovely things ... about Holland